Author Topic: Asthma - alternatives to corticosteroid preventers?  (Read 31380 times)

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #125 on: 27 April, 2016, 07:30:23 am »
Argh.  The inhaler switch debacle disrupted my control of my asthma which was irritating enough. I've now got a chest infection with vomiting and other assorted symptoms. Peak flow at 60% of my usual so GP put me on 40mg / day prednisolone, antibiotics and upped my Seretide to 250.

Pred makes me feel just terrible so I'm not looking forward to the side effects.

Am feeling extremely rough and tight chested. Coughing every couple of minutes and just want this to be over.   >:(

Ruthie

  • Her Majester
Re: Asthma - alternatives to corticosteroid preventers?
« Reply #126 on: 27 April, 2016, 07:56:44 am »
Peli it's just bloody grim isn't it.  Total sympathy. 

 :-*
Milk please, no sugar.

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #127 on: 27 April, 2016, 08:01:35 am »
 :-* Ruthie.

Even in the fresh air of the Dales it's not safe. I blame the damp air.

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #128 on: 26 May, 2016, 09:20:38 am »
Peli - do you get the "inappropriate happiness" side effect of Pred? Honestly, it's like doing class-As for me, except it also makes me want to ride my bike. I wouldn't say they are more ish, but certainly on days I'm feeling worn out, there's the temptation to pull a Froome and get a TUE for it.

So, still loving the powerbreathe (thanks to peli). So much so, me and another researcher have clubbed together the money to buy a K5 powerbreathe, a smart spirometer, and a load of powerbreathe classics with the plan to run a feasibility trial. I think we share the view that using then like McConnell prescribes is really horrid, so people need support. Whether spirometry is sensitive to whatever effect we do or don't have, we'll see. Need a friendly respiratory person. Will be tapping up CL,  but if any Yorkshire person thinks that their consultant isn't a knob, I'd be interested to hear.

As an aside, Leeds Chest Clinic is a horrible place that makes me feel like I'm being punished, much as benefits offices did when I was on JSA in the early 90s. Fortunately, they manage their patients so badly, I've been discharged twice (they don't listen to the appointment line answer phone, so discharge you when you leave messages saying you can't make an appointment). Currently, I am not arsed to go back. I hate it there (whereas the paediatric CF clinic is ace - I wish I could go there).

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #129 on: 26 May, 2016, 09:25:29 am »
I'm being good with inspiratory muscle training (using the powerbreathe I got off peli).
I clearly should have been less complacent about my symptomless asthma at the time and kept hold of it! ;) Glad it's working for you.

I'm just back from seeing the respiratory specialist GP at my local practice. He said my heartburn-like symptoms were unusual, but it could have been that the Seretide caused thrush/irritation further down my throat. My heart and lungs sounded fine to him, so he just wants me to keep an eye on things. If I have a severe attack he recommended calling their duty doctor for a nebuliser, rather than going to Airedale.
Just seen this. I get dreadful heartburn from my meds (suspicion is that it's the carbocistine), and have been put on progressively higher doses of omeprazole until it's gone away. The side effect of that is that I can no longer tolerate alcohol. The side effect of that is that the money has gone on carbon bits for my bike.

Heartburn > 7kg Madone. The side effects of treatment aren't all bad.

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #130 on: 26 May, 2016, 10:05:44 am »
If you are/have been getting heartburn, are you sure you haven't been getting some of the side-effects of GERD (inflammation of Various Tubes restricting breathing)?
This can be quite serious (a chap died of it in York a couple of years back). I've been misdiagnosed with COPD before a smart doctor diagnosed GERD.
<i>Marmite slave</i>

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #131 on: 28 May, 2016, 04:45:38 pm »
Peli - do you get the "inappropriate happiness" side effect of Pred? Honestly, it's like doing class-As for me, except it also makes me want to ride my bike. I wouldn't say they are more ish, but certainly on days I'm feeling worn out, there's the temptation to pull a Froome and get a TUE for it.
Ha, the doctor asked me that. No! I get the opposite. I feel terribly depressed and lethargic on pred, lose my appetite, don't want to drink. I just go to bed and sleep and sleep. I came off them as soon as I could, but they did help get my peak flow back up to 80-90% of normal (it had dropped to 60% with the chest infection).

Hope you're feeling better soon, DrM!

dim

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #132 on: 28 May, 2016, 10:52:21 pm »
my daughter suffered from Asthma, especially when the rapeseed fields are in bloom.

She now adds a teaspoon of Manuka honey to her tea first thing in the morning. There are different 'strengths' of this honey, and she buys the one with the highest number (the most expensive one)

this is what she uses....
http://www.thehealthbay.com/nelson-honey-300-gold-super-manuka-500g.html?utm_source=google_shopping&gclid=CjwKEAjwg6W6BRDn6v__7vzN9QkSJAC9l9C3daTxjdayK9RS3xqEiJja61kVupM8JAIHveTjZ8gIthoC-ETw_wcB


it works for her
“No great mind has ever existed without a touch of madness.” - Aristotle

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #133 on: 05 June, 2016, 11:57:49 am »
Uni are being nice to me, and given me some sweetie money which I have spent on a smart spirometer, a powerbreathe K5 (the spendy one) and 30 powerbreathe classics - enough toys to run a feasibility trial. Want to see if the behaviour change stuff I do can enhance the efficacy of powerbreathe via adherence. Will need proper money to do it properly, but suspicious that few pts are adherent, thus it doesn't look promising in some contexts where I think it should.

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #134 on: 05 June, 2016, 02:57:56 pm »
pts = patients?

Physio dept said that it is rare for patients to actually follow the set regime. Reckoned most stick to it for a couple of weeks at most and only then half-heartedly.
<i>Marmite slave</i>

Re: Asthma - alternatives to corticosteroid preventers?
« Reply #135 on: 06 June, 2016, 07:04:11 am »
Yes, and yes - the prof who gave me the cash wants to look at physio adherence.

Personal experience of physiotherapy is that the practitioners are only beaten by anaesthetists in their unrealistic expectations of how many new behaviours people can adopt in one go. I tell my sports physio to only give me 3 or 4 drills. Any more than that, and I won't do them habitually.

Ruthie

  • Her Majester
Re: Asthma - alternatives to corticosteroid preventers?
« Reply #136 on: 21 July, 2016, 12:58:10 pm »
Stoopid asthma has really kicked off today.  Taken so much ventolin I'm shaking all over and I feel terrible and exhausted. 

I've had pharyngitis for a couple of days and being me I just got on with enjoying my life and ignoring it.  Maybe I should've rested instead.

Bah.
Milk please, no sugar.