Author Topic: Sleep  (Read 16001 times)

Re: Sleep
« Reply #25 on: 27 April, 2018, 06:41:33 am »
Hi / I work for Resmed Uk (market leading sleep solution company).   Go get yourself an apnea test done by your gp or privately.   It’s incredibly easy and can be done at home.   If you don’t get the right help from your gp give us a ring at Resmed.    We have clinicians who can provide you with the apnea home test kit very cheaply (might even be fee).   

Plenty of slight, fit athletes have apneas and have no idea.   You have classic symptoms of a mild sufferer.   If you did need cpap it’s really nothing to worry about and can change people lives.  If you are having apneas the long term effect of going untreated is horrific.   Get it ruled out professionally

Hope you get it sorted

Jaded

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Re: Sleep
« Reply #26 on: 27 April, 2018, 06:58:37 am »
Hi TREJ, hat length of gap in breathing would be considered to be apnoea?
It is simpler than it looks.

Re: Sleep
« Reply #27 on: 27 April, 2018, 07:20:55 am »
Apnea is the cessation of breathing during sleep. By a narrowing of the upper airway apneas occur or breathing stops.   Your body deals with it by gasping for air and you momentarily wake up.   Depends how many of these you have an hour if you need treatment but if you are having multiple apnea the loss of oxygen and stress of not breathing can lead to all kinds of secondary conditions.

In mild cases you will just feel Unsatisfied and tired after sleep and get mild  day time sleepiness.

Jaded

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Re: Sleep
« Reply #28 on: 27 April, 2018, 07:41:07 am »
It's not me, it's me listening to my partner...
It is simpler than it looks.

Wowbagger

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Re: Sleep
« Reply #29 on: 07 July, 2018, 09:37:36 am »
Last night was my first wearing a face mask attached to an air pumping machine (a Resmed Air10). I picked it up at Basildon Hospital yesterday and watched a video and power point presentation.

I was surprised how easily I slept with an Elephant Man mask on my face. When I had finished sleeping the machine told me that I had had 5h 59m using the mask but that the mask seal wasn’t good. I discovered that the tube wasn’t properly plugged into the mask, but I am also aware that beards are an issue where leaky masks are concerned. I have read that the chief issue of a leaky mask is that is stresses the machine more as it has to work harder and will wear out more quickly. I have also learned that there are lots of things that one can spend money on!

Jan said that she woke up several times in the night but not once did she hear me snoring. I can’t say that I feel any more refreshed than usual, but we were told it can take up to 3 months to get used to wearing the machine. That being the case, I think I have had a good start.
The loss of humanity I could live with.

Pedaldog.

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Re: Sleep
« Reply #30 on: 07 July, 2018, 10:45:33 pm »
I'm in a bad way, the last 2 weeks and another 2 to 3 weeks still to come. I can't use the C-pap machine due to the recent "Drillaholeinnahead" surgery. the "Plug" in my skull needs to be kept clean, dry and most importantly, in place. The straps of the mask make this too risky until the Plug comes out, I am a very Mobile Sleeper, so I'm getting the waking up (62 times every hour, according to the last test) and the snoring, last reckoned at 1100 snores in a 8 hour sleep session, is probably not making me popular with the rest of North Lancaster. Luckily, my machine is suitable for use with a, have to buy it myself, 12 volt traction battery. Means I can risk camping, car as transport for the weight, and not risk being Hacked to DETH by disgruntled fellow campers.
You touch my Coffee and I'll slap you so hard, even Google won't be able to find you!

Gattopardo

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Re: Sleep
« Reply #31 on: 07 July, 2018, 11:17:38 pm »
Trepanning....cool


Wowbagger

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Re: Sleep
« Reply #32 on: 08 July, 2018, 10:54:12 am »
Second night went rather well. 7 hours’ machine use and I think I feel more refreshed. For years I have never liked sleeping on my back. Even when I am awake, as soon as I start to relax I can feel my airways collapsing and restricting my breathing. With the machine pumping away that doesn’t happen.
The loss of humanity I could live with.

Pedaldog.

  • Heedlessly impulsive, reckless, rash.
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Re: Sleep
« Reply #33 on: 08 July, 2018, 11:15:46 pm »
Trepanning....cool

In a Stiff upper lip, Don't scream out loud Stylee!
You touch my Coffee and I'll slap you so hard, even Google won't be able to find you!

Wowbagger

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Re: Sleep
« Reply #34 on: 10 July, 2018, 11:36:33 am »
The machine sends my results to a web page and gives me a score /100 depending on certain factors. The first three nights have been 88, 92 and 90, which it says are excellent. Where I lost most of my points is on mask fit (9, 13 & 10/20). In order to get the best fit, I have to have it uncomfortably tight. This is entirely down to Beard. I also had 8.7, 1.5 and 5.n apnoea events per hour on each night respectively which implies, quite logically, that the better the fit the fewer apnoea events I get.

I phoned the hospital to see if they would provide a nasal cushion mask, which bypasses facial hair. I have a feeling that they don't but I am prepared to buy one if necessary. The guy who conducted the presentation - was he NHS staff or a company rep? I think he was NHS staff, because he warned us against spending money - and this thing could become a money sink...

At the presentation, he asked for a volunteer. I offered my services, but he rejected me because of my beard, and when he handed me the mask he seemed fairly pessimistic that I would get good results with it. The guy he did use as a guinea pig had stubble and the seal on his face wasn't brilliant.

So I have two options, the second of which is the nuclear option of beard removal. I shall try the mask first. Either way involves spending money (I don't possess any shaving kit of any kind), but beard removal also involves lots of wasted time shaving every day.
The loss of humanity I could live with.

Re: Sleep
« Reply #35 on: 10 July, 2018, 02:47:14 pm »
The machine sends my results to a web page and gives me a score /100 depending on certain factors. The first three nights have been 88, 92 and 90, which it says are excellent. Where I lost most of my points is on mask fit (9, 13 & 10/20). In order to get the best fit, I have to have it uncomfortably tight. This is entirely down to Beard. I also had 8.7, 1.5 and 5.n apnoea events per hour on each night respectively which implies, quite logically, that the better the fit the fewer apnoea events I get.

I phoned the hospital to see if they would provide a nasal cushion mask, which bypasses facial hair. I have a feeling that they don't but I am prepared to buy one if necessary. The guy who conducted the presentation - was he NHS staff or a company rep? I think he was NHS staff, because he warned us against spending money - and this thing could become a money sink...

At the presentation, he asked for a volunteer. I offered my services, but he rejected me because of my beard, and when he handed me the mask he seemed fairly pessimistic that I would get good results with it. The guy he did use as a guinea pig had stubble and the seal on his face wasn't brilliant.

So I have two options, the second of which is the nuclear option of beard removal. I shall try the mask first. Either way involves spending money (I don't possess any shaving kit of any kind), but beard removal also involves lots of wasted time shaving every day.


PM sent.  Just to add.... your sleep scores look very good for someone new to cpap.  Well done!  Takes some people months to get on with it.

As I said in my pm, try loosening it off.   You could buy the newest Airfit F20 soft touch face mask privately but you are looking at a one of cost of around £100 with about £30 extra every 6 months for new seals as they are memory foam and none cleanable unlike the rubber on your quattro.

A beard should still work though with Quattro.   Your scores suggest everything is pretty good.

One tip is to make sure you clean the seal frequently but only ever do it with standard green fairy liquid.   Never use anything else especially if its something with oil or skin softener in it (baby wipe for example).   Green fairy liquid really helps the mask to stop leaking even after months/years of use (although your sleep clinic should change the seal each year)

Wowbagger

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Re: Sleep
« Reply #36 on: 10 July, 2018, 10:32:06 pm »
Thanks. That's encouraging.

I spoke to the guy who conducted the presentation who was adamant that the mask I was equipped with was exactly right for me. He didn't think a nasal mask could help because of my moustache and the probability that I would sleep with my mouth open (mostly I don't think I do) allowing air to escape rather than keeping my airways inflated. Quite how he knows this is exactly the right mask for me based upon a quick glance I don't know. Also, it seems that the SD card in each machine have been personalised for the owner. All rather a lot to take in on a single seminar. I could have done with some personalised paperwortkto tell me what's what.

I have trimmed the beard & moustache this evening so I will see if that makes any difference to tonight's readings.
The loss of humanity I could live with.

Re: Sleep
« Reply #37 on: 10 July, 2018, 10:52:05 pm »
If you are coming to Mildenhall I can pop a little friend in my pannier.... :-D


Not fast & rarely furious

tweeting occasional in(s)anities as andrewxclark

Wowbagger

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Re: Sleep
« Reply #38 on: 10 July, 2018, 10:52:57 pm »
Camping is a problem now unless I have a hookup. I need a mains supply to keep my airways open!
The loss of humanity I could live with.

Kim

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Re: Sleep
« Reply #39 on: 11 July, 2018, 12:02:33 am »
Camping is a problem now unless I have a hookup. I need a mains supply to keep my airways open!

If only you had some sort of enormous battery on wheels you could plug it into...

Wowbagger

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Re: Sleep
« Reply #40 on: 11 July, 2018, 09:38:15 am »
Camping is a problem now unless I have a hookup. I need a mains supply to keep my airways open!

If only you had some sort of enormous battery on wheels you could plug it into...

I don't know how to obtain mains power from a Leaf battery.
The loss of humanity I could live with.

Chris S

Re: Sleep
« Reply #41 on: 11 July, 2018, 09:46:05 am »
Camping is a problem now unless I have a hookup. I need a mains supply to keep my airways open!

If only you had some sort of enormous battery on wheels you could plug it into...

I don't know how to obtain mains power from a Leaf battery.

Plug in inverter?

Kim will be along shortly with all the efficiency/loss related reasons it would be a Bad Idea. Or not. I have no idea.

Re: Sleep
« Reply #42 on: 11 July, 2018, 09:48:09 am »
There seems to be some expertise on sleep apnoea here. I would like to ask something. I dont like discussing Mrs Scums medical history on here, but I shall a bit.
Mrs Scum has MS, and when she is asleep she often has episodes of breathing appearing to stop and then starting again with lots of snoring and choking. sometimes I am a bit afraid that she will just stop breathing.

I guess the advice will be to consult a doctor. But does anyone know if this is common in MS?

Wowbagger

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Re: Sleep
« Reply #43 on: 11 July, 2018, 09:48:39 am »
But would that not require the car to be switched on all night, using electrons for many other purposes (eg running lights)?

SOTR: that sounds exactly like the symptoms of sleep apnoea. There must be some online videos of people suffering from this for you to compare.

Edit: https://www.youtube.com/watch?v=zHchEaObaBo

The guy addressing us reckoned that those jaw-shifting devices led to long-term problems.
The loss of humanity I could live with.

Re: Sleep
« Reply #44 on: 11 July, 2018, 09:49:50 am »
Camping is a problem now unless I have a hookup. I need a mains supply to keep my airways open!

If only you had some sort of enormous battery on wheels you could plug it into...

I don't know how to obtain mains power from a Leaf battery.

Plug in inverter?

Kim will be along shortly with all the efficiency/loss related reasons it would be a Bad Idea. Or not. I have no idea.

Or a team of YACFers pedalling static bikes hooked up to a generator.

Re: Sleep
« Reply #45 on: 11 July, 2018, 09:50:29 am »
Can you rig up a solar panel and leisure battery system like the campervans?
Quote from: Kim
^ This woman knows what she's talking about.

Chris S

Re: Sleep
« Reply #46 on: 11 July, 2018, 09:54:10 am »
Solar-powered Wowbagger? Yeah, I can see that.

Wowbagger

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Re: Sleep
« Reply #47 on: 11 July, 2018, 09:59:24 am »
Can you rig up a solar panel and leisure battery system like the campervans?

Trouble is, I tend to sleep at night. How about a lunar panel?
The loss of humanity I could live with.

Re: Sleep
« Reply #48 on: 11 July, 2018, 10:34:39 am »
There seems to be some expertise on sleep apnoea here. I would like to ask something. I dont like discussing Mrs Scums medical history on here, but I shall a bit.
Mrs Scum has MS, and when she is asleep she often has episodes of breathing appearing to stop and then starting again with lots of snoring and choking. sometimes I am a bit afraid that she will just stop breathing.

I guess the advice will be to consult a doctor. But does anyone know if this is common in MS?

No clinical background here but the answer to both questions is yes.   Get her to a sleep specialist or ring ResMed in Harwell/Oxon and speak to them.   I do not work for them anymore so I am not even biased!

Re: Sleep
« Reply #49 on: 11 July, 2018, 10:36:57 am »
But would that not require the car to be switched on all night, using electrons for many other purposes (eg running lights)?

SOTR: that sounds exactly like the symptoms of sleep apnoea. There must be some online videos of people suffering from this for you to compare.

Edit: https://www.youtube.com/watch?v=zHchEaObaBo

The guy addressing us reckoned that those jaw-shifting devices led to long-term problems.

There are official and unofficial solutions for powering the device during camping trips...some more expensive than opthers....again, I am sure ResMed will be happy to help.  They really are very good