Author Topic: Asthma - alternatives to corticosteroid preventers? (Read 31376 times)

fred the great · « **Reply #50 on:** 21 September, 2012, 04:09:35 am »

Cheers and thanks for the info Peli. In my case the thread prompted me to try Seritide which is rather expensive but I found that the cheaper Berodual is better, at least for me

peliroja · « **Reply #51 on:** 23 September, 2012, 08:09:15 am »

Good luck, Marbeaux.

I have to say, it is so nice to be able to breeeeeathe!

peliroja · « **Reply #52 on:** 01 October, 2012, 05:27:18 pm »

Hmm, update to this saga. I ran out of Advair HFA last night so have since taken four puffs (two last night and two this morning) of the Seroflo generic equivalent, obtained via the Canadian online pharmacy. I'm afraid to say that I'm wheezing again and have had to take my Salbutamol for the first time in a month. I can't identify any other trigger where we're staying. Is it possible it's a reaction to the new inhaler?

clarion · « **Reply #53 on:** 01 October, 2012, 09:02:55 pm »

Sorry to hear you're not so stable again. Might be a reaction to a different propellant, but the active ingredients should be exactly the same, ~~and in the same proportions.~~

Hold on, I've just noticed you said HFA. That has three different strengths (45/21; 115/21 & 230/21). A generic for Advair is more likely to have 250/50.

twiddler · « **Reply #54 on:** 09 October, 2012, 10:15:22 pm »

Quote from: clarion on 28 August, 2012, 08:25:51 am

I wonder if your tiredness might just be because of the exacerbation of your condition, and, despite not wheezing,you might still not be getting as much oxygen as normal. Just a thought, and I hope it resolves.

I quote the above not to single out a specific comment, but because it may be representative conventional thinking and inherited approaches to illness. I've just been listening to a chap called Hugh Montgomery being interviewed on The Life Scientific http://www.bbc.co.uk/programmes/b01n651h. He is an intensive care specialist whose studies indicate that sometimes the body does better with less; he has found that giving oxygen and feeding to 'normal' levels (the inherited reductive approach) can frequently cause harm. Whereas allowing the body to operate at lower levels of oxygen and fuel is related to a physiological shift which then aids recovery; from my limited understanding these findings may go some way to supporting Buteyko's approach (Buteyko suggests that the body's wheezing response is purposely reducing oxygen levels). Give it a listen yourself, i might have misunderstood him and be totally misrepresenting his work.

peliroja · « **Reply #55 on:** 11 October, 2012, 05:04:16 am »

In the end I was able to send back the unused generic Advair (which was 250mcg/25mcg, which apparently is the same as 230/21) and order Advair itself (well, actually Seretide, as it's coming from the UK).

In the meantime I had to go back to the doctor here in Portland and get a new prescription for Advair, and pay another $390 for an inhaler to tide me over. Sigh. The good news is that I'm not having adverse reaction to the 'proper' Advair, and it's definitely helping my wheezing.

It is a palaver, however.

Richard Friedel · « **Reply #56 on:** 06 December, 2012, 08:56:35 pm »

For an interesting alternative see http://www.youtube.com/watch?v=e9_mT4N5m8I starting at 44,09 on the timeline. Cheers, Richard

hellymedic · « **Reply #57 on:** 06 December, 2012, 11:26:06 pm »

This is not something I would try, if I were asthmatic.

Richard Friedel · « **Reply #58 on:** 07 December, 2012, 06:29:20 am »

Well, Dr. Hunninghake sounds very competent and the results offered by Philibert are quite respectable.

clifftaylor · « **Reply #59 on:** 07 December, 2012, 07:15:49 am »

Try googling "Dr Ron Hunninghake"- he has some unusual opinions re medical stuff....I'm not sure that "competent" is the word I'd use.

Richard Friedel · « **Reply #60 on:** 07 December, 2012, 10:22:42 am »

I do think that on this very subject he is extremely well reasoned. There would not be much to lose giving the Philibert method a try. For lack of talent, I don't want to try preaching, but isn't it the social responsibilty of any ill person to to show some initiative in getting a cure? RF

mrcharly-YHT · « **Reply #61 on:** 07 December, 2012, 10:41:34 am »

Richard, I haven't even bothered watching this video.

You've mentioned 'social responsibility'; are you aware that people die from asthma?

Suggesting that people 'give this a go' because 'There would not be much to lose' is possibly the reverse of 'social responsibility'. What might people have to lose?

Their life

Richard Friedel · « **Reply #62 on:** 07 December, 2012, 02:36:26 pm »

Then you cannot in good conscience attack a method without looking at the description I think I'm being sufficently empathetic. RF

hellymedic · « **Reply #63 on:** 07 December, 2012, 03:16:40 pm »

Richard, please can you tell us what qualifies you to propagate quack remedies?
You are a totally unknown newcomer to this forum with neither cycling background nor any obvious credentials.
http://sarahsasthmablog.wordpress.com/2011/02/01/richard-friedel-and-breathing-exercises-for-asthma-part-2/

Feline · « **Reply #64 on:** 07 December, 2012, 04:23:18 pm »

Quote from: hellymedic on 06 December, 2012, 11:26:06 pm

This is not something I would try, if I were asthmatic.

+1, and I am asthmatic!

clarion · « **Reply #65 on:** 07 December, 2012, 08:35:58 pm »

I am asthmatic. I've been involved in some very advanced treatment methods.

That video looks like a load of old bollocks. The man sounds like a quack. Whether he is or not isn't for me to judge, and, acting on clifftaylor's advice, I've found some things which have certainly raised an eyebrow.

valkyrie · « **Reply #66 on:** 07 December, 2012, 11:13:24 pm »

For the last couple of months I've had a really nasty cough - big long spasms varying from a few to 20 odd per day. I thought I had whooping cough but as I've now had it since September I finally went to the doc's today. He thinks its asthma and has prescribed Avamys, which is a nasal spray costicoroid. Have to say this seems pretty odd to me - I've had asthma a couple of time, once when I lived in a particular student flat and once running a 10km. But that last episode was over 10 years ago, so I don't consider myself asthmatic. I feel reasonably fit when I just doing general stuff but my aerobic capacity seems lower than it used to be - I'm slower cycling up hills than I was say a year ago.

Anyone heard of asthma presenting as a cough rather than the usual "tight chest" thing?

LindaG · « **Reply #67 on:** 07 December, 2012, 11:16:21 pm »

That was how my asthma presented. A cough that didn't go away. For months. Leaving me progressively more tired - till I couldn't get up the stairs without needing to sit down for a coughing fit. And couldn't speak in complete sentences without having a coughing fit.

It's not an uncommon presentation. As the air passages get tight, your body tries to get rid of the obstruction by coughing. Which further irritates things.

Fun, isn't it.

Kim · « **Reply #68 on:** 07 December, 2012, 11:16:49 pm »

Quote from: valkyrie on 07 December, 2012, 11:13:24 pm

Anyone heard of asthma presenting as a cough rather than the usual "tight chest" thing?

I think it's about relative gunk production. Mine's tended towards coughing up grot rather than acute tightness in recent years due to better management.

barakta · « **Reply #69 on:** 08 December, 2012, 12:12:04 am »

Avamys is great, my ENT specialist GP gave it to me a year ago for chronic rhinitis - snot which was running down my nose and throat onto my chest making me hack & wheeze. It takes about a week to start to work but really did the job, I'm tempted to ask for it properly instead of my usual nasal spray on prescription for my persistent impairment related ENT issues.

hellymedic · « **Reply #70 on:** 08 December, 2012, 12:19:32 am »

Quote from: valkyrie on 07 December, 2012, 11:13:24 pm

Anyone heard of asthma presenting as a cough rather than the usual "tight chest" thing?

It's the usual way asthma presents in kids and not uncommon in adults.

Richard Friedel · « **Reply #71 on:** 08 December, 2012, 09:19:37 am »

To clarion: Its all so elementary. According to Dr. Philibert of Louisiana there is this a so far unsuspected connection between the condition of a certain muscle (infraspinatus) and lung function. The doctor has extensively tested this and found that occasional injections of Lidocaine (you may get this at the dentist if you are sensitive to pain) provide relief. In other words, if the muscle is restored to its normal condition, the lung function is corrected. RF.

clarion · « **Reply #72 on:** 08 December, 2012, 09:39:43 am »

Snake oil can be effective, too.

mrcharly-YHT · « **Reply #73 on:** 08 December, 2012, 04:00:06 pm »

Quote from: Richard Friedel on 07 December, 2012, 02:36:26 pm

Then you cannot in good conscience attack a method without looking at the description I think I'm being sufficently empathetic. RF

I'm not objecting to the method, because I am simply not qualified to assess it.

I am objecting to your suggestion that asthmatics have not much to lose.

Feline · « **Reply #74 on:** 08 December, 2012, 10:14:15 pm »

Quote from: Richard Friedel on 08 December, 2012, 09:19:37 am

To clarion: Its all so elementary. According to Dr. Philibert of Louisiana there is this a so far unsuspected connection between the condition of a certain muscle (infraspinatus) and lung function. The doctor has extensively tested this and found that occasional injections of Lidocaine (you may get this at the dentist if you are sensitive to pain) provide relief. In other words, if the muscle is restored to its normal condition, the lung function is corrected. RF.

I've never met an asthma troll before, I didn't know they existed before you

*takes big puff of Qvar followed by a nice suck on my Ventolin*

Author Topic: Asthma - alternatives to corticosteroid preventers? (Read 31376 times)

LindaG