Author Topic: Dilated Cardio Myopathy  (Read 1222 times)

Dilated Cardio Myopathy
« on: January 12, 2018, 10:35:02 pm »
Not the greatest start to the New Year.
Mrs Miggins was not feeling too well over Christmas with what appeared to be a flu like cold.
On the 28th she collapsed with a pretty spectacular face plant and with her recent history of her broken neck, I took no chances and called an ambulance.
The paramedics found that her blood pressure was through the floor at 73/41 so they popped her on a saline drip and took her off to Leicester Royal.
12 hours in A&E and a decision was taken to transfer Joyce to Glenfield hospital for further tests.
As a child, Joyce was diagnosed with Wolfe Parkinson White syndrome, a condition which causes palpitations due to an extra electrical pathway in the heart. Twelve years ago, she had the extra pathway ablated which cured the problem.
At Glenfield, Joyce was placed on the Clinical Decisions Unit for further tests and later that day, diagnosed with Pneumonia. During the testing procedures, the doctors were unhappy with the ECG results so she was transferred to the Cardiac HDU.
To cut a long story short, after extensive testing and scans, Joyce has been diagnosed with DCM.
Her heart is only operating at about 50% efficiency.
As one can imagine, this has all come as a huge shock and will take some time to come to terms with but Joyce remains positive.
Today she was fitted with an ICD (implantable cardioverter defibrillator) which will look after her heart rhythm and all being well, will be allowed home tomorrow.
Now all I have to do is make sure she slows down and puts herself first for a change.....not an easy task!
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Re: Dilated Cardio Myopathy
« Reply #1 on: January 12, 2018, 10:43:40 pm »
My sympathies. I hope they can help.

hellymedic

  • Just do it!
Re: Dilated Cardio Myopathy
« Reply #2 on: January 12, 2018, 10:45:05 pm »
Really sorry to see this! I don't know much about DCM and expect Joyce's attendants to be well-informed and helpful.

Lousy start for the New Year, granted!

Hope the treatment minimise her symptoms and Joyce learns to tolerate living within her limited cardiac means.

Re: Dilated Cardio Myopathy
« Reply #3 on: January 12, 2018, 10:46:30 pm »
I'm glad to hear that the NHS stepped up in time and helped.

It sounds life-changing and scary. No doubt serious thinking lies ahead.
<i>Marmite slave</i>

Re: Dilated Cardio Myopathy
« Reply #4 on: January 12, 2018, 10:55:26 pm »
The NHS have been absolutely fabulous.
Joyce has been treated with professionalism and dignity at all times.
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Pedal Castro

  • so talented I can run with scissors - ouch!
    • Two beers or not two beers...
Re: Dilated Cardio Myopathy
« Reply #5 on: January 13, 2018, 07:38:52 am »
Please pass on my best wishes to Joyce, my BIL has a very similar condition and has just about adapted to taking it much easier than he used to.

CrinklyLion

  • The one with devious, cake-pushing ways....
Re: Dilated Cardio Myopathy
« Reply #6 on: January 13, 2018, 07:43:21 am »
Give her our love, from me and the Cubs!

T42

  • Old fool in a hurry
Re: Dilated Cardio Myopathy
« Reply #7 on: January 13, 2018, 08:14:43 am »
All the best to both of you, and Joyce especially.
I dare eat all that may become a man.

But hold the oysters.

Re: Dilated Cardio Myopathy
« Reply #8 on: January 13, 2018, 10:06:18 am »
Sh*t! Not more!
Hugs and much love and well wishes to Joyce (and the rest of the clan too).

Re: Dilated Cardio Myopathy
« Reply #9 on: January 13, 2018, 10:15:29 am »
Lots of love to you and Joyce. That sounds much too eventful. I hope she can manage to relax a little.

Quote from: Kim
^ This woman knows what she's talking about.

Re: Dilated Cardio Myopathy
« Reply #10 on: January 13, 2018, 10:16:44 am »
Oh dear. Glad to hear that Joyce was well taken care of and best wishes to her.
'Absence of evidence is not evidence of absence'.

Martin John Rees.

Re: Dilated Cardio Myopathy
« Reply #11 on: January 13, 2018, 11:20:24 am »
Oh dear. Glad to hear that Joyce was well taken care of and best wishes to her you both.

Almost wot he said.

Hope to see you both out and about soon.

Wowbagger

  • Dez's butler
    • Musings of a Gentleman Cyclist
Re: Dilated Cardio Myopathy
« Reply #12 on: January 13, 2018, 04:37:48 pm »
Blimey, LaB, that's not good! Big hugs & stuff from Jan & me.
Basses lower the tone.

Auntie Helen

  • 6 Wheels in Germany
Re: Dilated Cardio Myopathy
« Reply #13 on: January 13, 2018, 05:22:13 pm »
Best wishes to Joyce (and to you!) from Klaus and me!
My blog on cycling in Germany and eating German cake – http://www.auntiehelen.co.uk


Re: Dilated Cardio Myopathy
« Reply #14 on: January 13, 2018, 09:21:31 pm »
Thanks one and all.
Joyce is now home, very tired and a little anxious but very pleased to be back in her own bed.
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Basil

  • Um....err......oh bugger!
  • Help me!
Re: Dilated Cardio Myopathy
« Reply #15 on: January 13, 2018, 09:23:45 pm »
Best wishes both.
Quote from: Kim
And remember that friends who organise things on Facebook aren't proper friends anyway.

Re: Dilated Cardio Myopathy
« Reply #16 on: January 13, 2018, 11:52:30 pm »
Big hugs & best wishes to you both.
Not fast & rarely furious

tweeting occasional in(s)anities as andrewxclark

Re: Dilated Cardio Myopathy
« Reply #17 on: January 18, 2018, 11:01:53 am »
News Update....
Joyce is recovering well and getting stronger each day.
We have had a couple of gentle walks and been out to do some shopping.
She has her first appointment at the "Rythmn Clinic"....sounds like a dance class, in early February. That should give her the opportunity to discuss the level of exercise that she can realistically hope to achieve.
Her condition cannot be cured and may possibly deteriorate further but there is no point in trying to second guess this.
Thanks all for your kind messages of support.
We will keep you posted.

Simon :thumbsup:
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Re: Dilated Cardio Myopathy
« Reply #18 on: March 05, 2018, 04:30:58 pm »
Joyce is pretty cheesed off, having been gradually getting back into exercise, she now has shingles!
She is now on a weeks course of anti viral tablets. >:(
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Re: Dilated Cardio Myopathy
« Reply #19 on: March 22, 2018, 10:06:48 pm »
Good to hear that being Ill cheeses Mrs Miggins off.  She must otherwise be on fine form.   :thumbsup: