Thank you Matthew, I have had you in mind when thinking about hips.
Clinician was really very good, the benefits of having read the bloody notes and my prep info, paid attention and been methodical. I suspect he googled my rare syndrome and discovered what I learned today - hip dysplasia is linked to my syndrome which I did not know...
I think what is upsetting me the most is that I have had poorly explained mobility issues ALL my life, repeatedly sought help in my childhood/teens including from an ortho consultant and got fobbed off with "growing pains". My mobility since 2008 has been very poor and I've constantly been accused of being lazy or just unfit because I couldn't say why walking distances most people manage easily were really painful and difficult for me.
I have to see my GP to get my repeat prescriptions before my prepayment card runs out (computer says so) and will be asking what she can see of my 2008 GP record in case that sheds any light on why I was told the xray was normal. I've also SARed the Xray, radiologic and other data with it and had an acknowledgement from the info team for that.
I suspect we'll have to stick with 1.5T MRI cos there's no more safety info available. I'm surprised they're more worried about the BAHA which is Titanium and Gold whereas my arm pins are steel of some kind which actually can get magnets to stick to it as per
Ah well I got some sensible advice for interim management which is keep moderating activity but I can do non impact. Kim is going to put the trike on the turbo as I can do that a bit so I don't get stuck with hip pain X km from home like last time. And keep making use of my higher rate PIP for taxis and stuff. I'll be seen 6 weeks after the steroid injection which itself will be SomeNumber of weeks (hopefully before Xmas).