Well, a week down the line I am now out of the emergency care system and into being able to see consultants who have the time to consider the issues. I went to a Rheumatologist last Thursday (and I have a dermatologist with special interest in HSP lined up tomorrow), overall I am infinitely better shape than a week ago.
The rheumatologist, having regard to my priority of walking my daughter down the aisle next Saturday, prescribed a course of Prednisolone steroids - 1 week at 15mg, dropping to a second at 10mg. It appears to be Good Stuff. Only, I have a few concerns.
I've been on a weight loss kick for the last six months, having cut out alcohol, and I've dropped from 107kg then to 91kg now before this kicked off, losing weight steadily and slowly. But, here are the datapoints since this thing hit:
June
11th - 91.2
12 - 90.8
13 - 90.1
14 - 89.8
15 - 88.6 <- up to here no appetite but I was still eating, started steroids
16 - 87.8
17 - 87.2
18 - 87.3 <- made an effort to eat more
19 - 86.8
I don't know whether to worry or not. To me, it looks too much too fast to be healthy. Where's the loss coming from? But then again, I don't want to compromise the weight loss I'm managing, and then again, will steroids kick in and push it the other way? My target is around 80Kg (at which point I hit the top end of normal on the BMI scale). Right at the moment, I feel as alright as likely possible that is "OK but feeble and wiped out easily".
Oh, and what are the real world effects of mixing alcohol and steroids? Thinking ahead to Saturday.