Author Topic: Optical Symptoms - Migraines  (Read 16775 times)

hellymedic

  • Just do it!
Re: Optical Symptoms - Migraines
« Reply #125 on: June 26, 2019, 04:38:38 pm »
I've been sending scrambled birthday messages to Wow because I was hitting the wrong keys and could not see the right half of the world properly.

I think I'm better now.

Please forgive any gobbledygook!

I don't have a headache...

barakta

  • Bastard lovechild of Yomiko Readman and Johnny 5
Re: Optical Symptoms - Migraines
« Reply #126 on: June 26, 2019, 09:29:20 pm »
Ugh, hope your vision's back to normal and you don't get any other postdrome symptoms. I don't usually get much of a headache, more just pressure or occasionally weird jaw pain.

hellymedic

  • Just do it!
Re: Optical Symptoms - Migraines
« Reply #127 on: June 26, 2019, 09:38:13 pm »
I'm very much back to normal now, thanks!

I generally need to be VERY stressed to have this.

I was.

I'm sure Wow will forgive my typing.

barakta

  • Bastard lovechild of Yomiko Readman and Johnny 5
Re: Optical Symptoms - Migraines
« Reply #128 on: June 26, 2019, 11:34:22 pm »
Sorry you had so much stress to trigger a migraine. I'm sure Wow will understand.

barakta

  • Bastard lovechild of Yomiko Readman and Johnny 5
Re: Optical Symptoms - Migraines
« Reply #129 on: July 05, 2019, 02:44:49 pm »
Migraine clinic appointment yesterday was a waste of time cos NICE have delayed their decision on CGRPs the latest meds... Nurse had been hoping for a decision by the time she saw me as my appt has been put back once from Feb to May then to July cos of hospital access issues ...

I've failed on at least 3 prophylactic treatment classes (anti depressant, beta blocker and anti-epileptic) and Nurse doesn't think botox is going to help and it would require several injections at the hospital with evil flickering lights (which I'm in legal complaint with them about now).

I had to have this appt at a different healthcentre cos hospital can't provide a spare room for me to wait in without evil flickering lighting in a fucking migraine clinic and they're refusing to fix the evil lighting (which I am pushing for). Healthcentre was 50% better, only evil lighting in corridor but I won't be able to access any treatment at there... So that's an element to add to complaint (I'm trying to get the trust to comply with the basics of the accessible information standard and Equality Act with simple not expensive changes to practice which they should be doing anyway).

hellymedic

  • Just do it!
Re: Optical Symptoms - Migraines
« Reply #130 on: July 05, 2019, 03:04:12 pm »
That really is shit, barakta!

Really hope you get better treatment and environment!

barakta

  • Bastard lovechild of Yomiko Readman and Johnny 5
Re: Optical Symptoms - Migraines
« Reply #131 on: July 05, 2019, 09:45:41 pm »
Thanks. I've got the nurse to send me/GP the protocol for propanalol for migraine as I figure retrying that is worth a try as the last time I used it was 1994 and from talking to the nurse I probably wasn't on a high enough dose for long enough. Also it doesn't involve blood tests and I suspect my GP would agree to prescribe. Worst case it doesn't help or has side effects...

hellymedic

  • Just do it!
Re: Optical Symptoms - Migraines
« Reply #132 on: July 06, 2019, 12:06:39 am »
Good luck! Propranolol is cheap (I think but Brexit/Trumponomics might change this) so your GP won't be deterred on this count.

Re: Optical Symptoms - Migraines
« Reply #133 on: October 06, 2019, 08:26:56 am »
Super early days, but I started on a keto diet last Sunday...I had migraine Monday and since then, nada.  Had a couple of warning signs, but ignored them and they turned out to be nothing.
While weightloss was the primary reason, I was also keen to try it because there's some suggestion that it can help with chronic migraines and so far so good?.

hellymedic

  • Just do it!
Re: Optical Symptoms - Migraines
« Reply #134 on: October 06, 2019, 02:21:09 pm »
[Anecdata] My migraines have been very sporadic an AGES apart but more often associated with travel and disrupted eating than much else. Intermittent high carbing might be a factor.

Re: Optical Symptoms - Migraines
« Reply #135 on: October 23, 2019, 03:55:26 am »
3.5 weeks in and it's ~2 mild/medium migraines a week. Huge improvement.
I shall have a croissant on Sunday to mark the 4 week mark and see how I react then.
Also seeing my neurologist on Friday, so I'd be curious to what he has to say.

Re: Optical Symptoms - Migraines
« Reply #136 on: October 25, 2019, 10:55:21 pm »
Interesting as a very high fat diet was once prescribed for epilepsy. Whilst not similar they are both nerve problems.

Re: Optical Symptoms - Migraines
« Reply #137 on: October 27, 2019, 09:22:31 pm »
Actually, that's partly what led me to try it. While there wasn't enough data on migraines, there was on epilepsy, which suggested that it did something to the brain.
8 days without a migraine. This is the longest since I started keeping diary (2+ years).

Mrs Pingu

  • Who ate all the pies? Me
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Re: Optical Symptoms - Migraines
« Reply #138 on: October 27, 2019, 10:12:11 pm »
 :thumbsup:
Do not clench. It only makes it worse.

barakta

  • Bastard lovechild of Yomiko Readman and Johnny 5
Re: Optical Symptoms - Migraines
« Reply #139 on: October 28, 2019, 07:26:27 pm »
Interesting. I've heard lots of stuff about the overlaps between epilepsy and migraine. And certainly anecdotally many epileptics experience similar visual stress symptoms to migraineurs even if they're not officially photosensitively triggered.

Re: Optical Symptoms - Migraines
« Reply #140 on: October 30, 2019, 09:36:17 am »
I'm a long time lurked but rare commentator in migraine corner because as bad as my family think mine are they're nothing like how you good people suffer. I only get one debilitating attack a month out seems. Although I feel like I'm in a state of getting a second for 2 weeks.

Had one Sunday about 10am. I was able to safely drive the van home by 1pm. A couple of years ago my migraine completely changed. From having a uniform pattern of attack. It's now going fast at times. I'm also noticing I've had periods of mild light sensitivity with no other migraine types of symptoms.

This all worries me. I liked my uniform nature of migraines. It has been almost constant since it first appeared with a fury at school decades back. It comforts me to know ahead of time my migraine cycle so I have the opening to getting over it in mind.

Very predictable until past year. Then milder attacks. Even the Triptan I have sometimes worked. Worse than my bad,  predictable attacks of old.

Another worry I have is occasional visual effects in left eye. It's like my eyesight is failing but it's very migraine like. That happens very often. Could that be migraine related or is it just eyesight related? Is it optician or gp visit symptom?

Kim

  • Timelord
Re: Optical Symptoms - Migraines
« Reply #141 on: October 30, 2019, 09:46:44 am »
Another worry I have is occasional visual effects in left eye. It's like my eyesight is failing but it's very migraine like. That happens very often. Could that be migraine related or is it just eyesight related? Is it optician or gp visit symptom?

On the eyes-are-precious principle, I'd suggest getting an optiquack to eliminate obvious physical symptoms first, if only because it's quick and easy to get appointments with them.
Careful, Kim. Your sarcasm's showing...

Re: Optical Symptoms - Migraines
« Reply #142 on: October 30, 2019, 10:33:18 am »
What Kim said. Opti ducks have the equipment for measuring issues with your eyes, and the specialist training for checking issues.

Might well be migraine-related. But get a real medical professional to check (and rule out) eye illnesses first.
<i>Marmite slave</i>

Re: Optical Symptoms - Migraines
« Reply #143 on: October 30, 2019, 12:44:15 pm »
Optiquack? Is that gp or ophthalmic technician at specsavers? Seriously,  English guy who has three specsavers franchise in the next town to mine that I use is very,  very good and gives you advice that all other opticians should have given me for the last 30+ years but didn't. High prescription and high risk for detached retinas. He told me that info plus the symptoms and recommended action. A&E because early diagnosis allows for saving sight,  even repair apparently.

Find a good optician sent and insist on only seeing them. Worth doing imho.

Anyway,  doctor or optician? Don't understand optiquack term sorry.

Kim

  • Timelord
Re: Optical Symptoms - Migraines
« Reply #144 on: October 30, 2019, 01:37:18 pm »
'optiquack' is sheddispeak for optician, sorry.
Careful, Kim. Your sarcasm's showing...

Re: Optical Symptoms - Migraines
« Reply #145 on: October 30, 2019, 06:59:32 pm »
Sheddispeak?

This could carry on and on if we're not careful.  :)

Kim

  • Timelord
Re: Optical Symptoms - Migraines
« Reply #146 on: October 30, 2019, 07:07:45 pm »
uk.rec.sheds aka Ye Shedde, a place from the days when the internet was black&white 7-bit ASCII, and threading worked properly.

It's a bit like a combination of YACF's The Pub and The Knowledge forums, and several forumites are veterans.  Word play, especially that based on ROT13, is strongly encouraged.
Careful, Kim. Your sarcasm's showing...

hellymedic

  • Just do it!
Re: Optical Symptoms - Migraines
« Reply #147 on: October 30, 2019, 07:20:38 pm »
Certainly, Tim Hall, Mr Larrington, me and a few others were Sheddi.

Some of us still hang around a sheddy Facebook group.

Re: Optical Symptoms - Migraines
« Reply #148 on: November 04, 2019, 11:07:53 pm »
So, this weekends trip/tournament meant I ended up blowing up my carb budget and somewhat predictably, the migraines returned.
The next test is to see if I can get rid of them again!. Back on keto as of yesterday evening, but last time it took a good 3 weeks to clear the migraines completely. (Although with significant improvement the first week).


Re: Optical Symptoms - Migraines
« Reply #149 on: November 08, 2019, 02:14:34 am »
Super early days, but I started on a keto diet last Sunday...I had migraine Monday and since then, nada.  Had a couple of warning signs, but ignored them and they turned out to be nothing.
While weightloss was the primary reason, I was also keen to try it because there's some suggestion that it can help with chronic migraines and so far so good?.
I'm just reading a New Scientist article about keto helping with migraines (24 aug, prior to recycling).
74% of people had less than half the normal number of migraine affected days while on a keto diet, it says.
About double the best alternative drugs, though short term so far.

Is that what prompted your choice?